DATE: Saturday, August 7, 2010
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LOCATION: 4th Floor Bradley Lecture Center Children’s Harbor Family Center at Children’s Hospital 1600 6th Avenue South Birmingham, AL 35233 Phone: (205) 939-5999 |
CONFERENCE FEES:
Rett Syndrome Families (parents and siblings still living in the home with the Rett child) -
$25.00 per family, price includes continental breakfast and full lunch buffet.
**Skilled care provided in the “FELLOWS CONFERENCE ROOM” for Rett Syndrome children/adults, and their siblings**
Grandparents, extended family and friends – $10.00 per person, price includes continental breakfast and full lunch buffet.
Professionals- $45.00 per person, price includes continental breakfast and full lunch buffet. CEU’s provided for: Information to come!!
ADDITIONAL WEEKEND ACTIVITIES: Friday night “Meet & Greet” on the 1st floor at the Residence Inn from 5:00 pm until 8:00 pm – free to everyone – please come socialize and hang out with us. Sunday morning breakfast from 8:00am until 10:00am, for conference attendees and speakers at the Residence Inn. Breakfast will be free to all hotel guest and will be $10.00 for all others.
**Attn Nurses: Please bring your license to the conference for the scanning of your CEU’s**
Click here for On-Line Registration or Click here for Mail-in Registration Form
CONFERENCE SCHEDULE:
"The Joy of Being in the Presence of Silent Angels "
8:00 – 8:45 Continental Breakfast/Registration
9:00 – 9:15 Welcome – Jane Lane, R.N., B.S.N., Rett Center of Excellence, Civitan International Research Center, University of Alabama at Birmingham, Birmingham, AL – Room 400, Bradley Lecture Center
9:15 – 10:30 General Session 1 – Alan Percy, M.D., Rett Center of Excellence, Civitan International Research Center, University of Alabama at Birmingham, Birmingham, AL, “Rett Syndrome 101″ -Room 400, Bradley Lecture Center
10:30 – 10:40 BREAK
10:45 – 11:45 General Session 2 – Carolyn Schanen, M.D., PhD., Nemours Biomedical Research, Wilmington, DE., “Genetics of Rett Syndrome” – Room 400, Bradley Lecture Center
11:45 – 1:15 LUNCH
1:15 – 2:15 Breakout Sessons
(A) Cindy Timp, MEd., Special Education, Washington County Virginia Schools, Bristol, VA, “Inclusion in the Classroom” - Room 400, Bradley Lecture Center
(B) Andrea Mixson, J.D., MEd., Alabama Disabilities Advocacy Program, Tuscaloosa, AL, “Disability Rights-Medicaid Waiver Eligibility and Services” - Lee Conference Room, Bradley Lecture Center
2:15 – 2:25 BREAK
2:25 – 3:25 Keynote Speaker – Daniel Glaze, M.D., Blue Bird Rett Center, Baylor College of Medicine, Houston, TX, “Seizures and Sleep in Rett Syndrome” – Room 400, Bradley Lecture Center
3:25 – 3:35 BREAK
3:35 – 4:35 General Session 3 – Phil Timp, B.A., The Beth Foundation, Bristol, VA, “In All Her Silence” – Room 400, Bradley Lecture Center
4:35 – 4:45 BREAK
4:45 – 5:30 “Let’s Talk It Over” – Mom’s with older Rett children – Room 400, Bradley Lecture Center
5:30 – 6:00 Social time for Rett families – Room 400, Bradley Lecture Center
LODGING
Residence Inn by Marriott
[SRSA Official hotel. Friday night "Meet & Greet" and Sunday morning "Breakfast", will be held here.]
821 20th Street South
Birmingham, AL 35205
Ph# 1-205-731-9595
Studio Suite – Residence Inn Downtown @ UAB Rate: $95.00 per night
One Bedroom Suite – Residence Inn Downtown @ UAB Rate: $119.00 per night
Two Bedroom Suite – Residence Inn Downtown @ UAB Rate: $219.00 per night
+ $15.00 per night for parking
Website: http://www.marriott.com/hotels/travel/bhmri-residence-inn-birmingham-downtown-at-uab/
**Handicapped Accessible transportation is available from the Residence Inn on Saturday to and from the Conference
Courtyard by Marriott Birmingham
1820 5th Avenue South
Birmingham, AL 35233
Ph# 1-205-254-0004
Website: www.marriott.com/BHMDW
Rate: $99.00 per room, per night + tax + $8.00 per day for parking
Doubletree Hotel Birmingham
808 20th Street South
Birmingham, AL 35205
Ph# 1-205-933-9000
Website: www.birmingham.doubletree.com
Rate: $108.00 per night + $5.00 per day for parking
Be sure to tell them that you are a part of the Southeastern Rett Syndrome Alliance Conference when you make your reservation. (Also try just the name Rett Syndrome since it could be listed under that also). The rates will be good for the nights of August 6 & August 7th. We have also requested that each hotel give us as many handicapped accessible rooms as possible for the weekend. Those will be on a first come, first serve basis.
The cutoff dates for the reservations at the special rates listed above are as follows:
So make those reservations early!
LUNCH BUFFET MENU
Penne Chicken Alfredo
Marinated Char Grilled Chicken Breast
Mashed Potatoes
Mixed Garden Grilled Vegetables
Broccoli Casserole
Tossed Salad
Assorted Rolls with butters
Brownies and Lemon Squares
Sweet / UnSweet Iced Tea (lemons) and Bottled Water
Click here for On-Line Registration or Click here for Mail-in Registration Form
Click here to print Scholarship Application Form
Alabama Families Only: Click here to apply for ACDD Consumer Involvement Fund
UPDATE: AS OF JULY 15, 2010 WE STILL HAVE SCHOLARSHIPS AVAILABLE FOR THE CONFERENCE FOR ALL FAMILIES IN ALL LOCATIONS. IF YOU ARE INTERESTED PLEASE CONTACT US ASAP!
More information to come, be sure to check back often!
If you are interested in helping with the conference please email us at admin@serett.org
Thank You!
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