Southeastern Rett Syndrome Alliance

CONFERENCE SCHEDULE:

"THE TEAM APPROACH: Remembering Every Tender Touch"

8:00-8:45 Continental Breakfast/Registration

9:00-9:15 Welcome/ Introduction of Keynote speaker - Dr. Alan K Percy , Professor of Pediatric, Neurology, Neurobiology, Genetics; UAB Dept. of Pediatrics, Birmingham, AL - Room 400, Bradley Lecture Center

9:15-10:30 Keynote speaker - Kathleen J. Motil, M.D, Ph.D., Associate Professor, Department of Pediatrics, Section of Gastroenterology, Hepatology, Nutritionist, Baylor College of Medicine of Houston, Texas. “Understanding Gastrointestinal Problems in Rett Syndrome” -Room 400, Bradley Lecture Center

10:30-10:45 BREAK

10:45-11:30 Keynote speaker - John Killian, M.D., Pediatric Orthopaedics, Scoliosis, Orthopaedics Specialists of Alabama, Birmingham, AL. “Dealing with Orthopedic Problems in Rett Syndrome” - Room 400, Bradley Lecture Center

11:30-1:00 LUNCH

1:00-1:45 Breakout session I

(A) “Prevention of Physical Injuries for Caregivers” - Judith E. Drews, PT, PhD, PCS, Civitan-Sparks Clinic, UAB, AL, Birmingham, AL - Room 400, Bradley Lecture Center

(B) “Womanhood and Rett Syndrome: From Puberty to Menopause” – Jane Lane, BSN, RN, Research Nurse Manager, Civitan International Research Center, UAB, Birmingham, AL - Lee Conference Room

(C) “Tapping Into Resources For Physical and Emotional Needs” - Gina E. Harris, LCSW, DCSW, Director, Family Services, UAB Citivan Center, Sparks Clinic, Birmingham, AL - Ireland Conference Room

(D) “Transitioning From Childhood into Adulthood” - Barbara Lawrence, B.S., M.B.A., J.D., Alabama Department of Advocacy Program, University of Alabama; Alabama Council on Disabilities, Tuscaloosa, AL - CEU Area, Room 410

(E) “Tell Me How You Feel” - Karen Patterson, B.S., Eyes Please Communication for Non-verbal Children/Adults, Public School Special Education Teacher (24 years), Biloxi, MS - Room 401

2:00-2:45 Breakout session II

(A) “Prevention of Physical Injuries for Caregivers” - Judith E. Drews, PT, PhD, PCS, Civitan-Sparks Clinic, UAB, Birmingham, AL - Room 400, Bradley Lecture Center

(B) “Womanhood and Rett Syndrome: From Puberty to Menopause” – Jane Lane, BSN, RN, Research Nurse Manager, Civitan International Research Center, UAB, Birmingham, AL - Lee Conference Room

(C) “Tapping Into Resources For Physical and Emotional Needs” - Gina E. Harris, LCSW, DCSW, Director, Family Services, UAB Citivan Center, Sparks Clinic, Birmingham, AL - Ireland Conference Room

(D) “Transitioning From Childhood into Adulthood” - Barbara Lawrence, B.S., M.B.A., J.D., Alabama Department of Advocacy Program, University of Alabama; Alabama Council on Disabilities, Tuscaloosa, AL - CEU Area Room 410

(E) “Tell Me How You Feel” - Karen Patterson, B.S., Eyes Please Communication for Non-verbal Children/Adults, Public School Special Education Teacher (24 years), Biloxi, MS - Room 401

2:45-3:00 BREAK

3:00- 3:45 Keynote Speaker - Rick Radar, M.D., Editor in Chief, Exceptional Parent Magazine, Chattanooga, TN - “The Sensory Experience of Parenting a Child with Special Health Care Needs” - Room 400, Bradley Lecture Center

4:00- 4:45 Let’s Talk It Over: Sibling panel - Room 400, Bradley Lecture Center

4:45- 6:00 Social time for Rett families - Room 400, Bradley Lecture Center

Keynote Speakers:

Kathleen J. Motil, M.D, Ph.D., Associate Professor, Department of Pediatrics, Section of Gastroenterology, Hepatology, Nutritionist, Baylor College of Medicine of Houston, Texas

John Killian, M.D., Pediatric Orthopaedics, Scoliosis, Orthopaedics Specialists of Alabama, Birmingham, AL

Rick Rader, M.D., Director, Morton J. Kent Habilitation Center, President, American Academy of Developmental Medicine and Dentistry, Editor in chief, Exceptional Parent (EP) Magazine Adjunct Professor, Human Development, University of Tennessee at Chattanooga Board, American Association on Health and Disability, Co-founder, Label Me Not, The Campaign for a Stigma Free Society, Chattanooga, TN

LODGING

Doubletree Hotel Birmingham
808 20th Street South
Birmingham, AL 35205
Ph# 1-205-933-9000
Website: www.birmingham.doubletree.com
Rate: $99.00 + tax, per night + $8.00 per day for parking

Courtyard by Marriott Birmingham
1820 5th Avenue South
Birmingham, AL 35233
Ph# 1-205-254-0004
Website: www.marriott.com/BHMDW
Rate: $101.00 per room, per night + tax + $6.00 per day for parking

Medical Center Inn
800 11th Street South
Birmingham, AL 35205
Ph# 1-866-933-1901
Website: www.Medicalcenter-Inn.com
Rate: $79.00 + tax, per night + free parking

We have blocked off 15 rooms at each hotel. Be sure to tell them that you are a part of the
Southeastern Rett Syndrome Alliance Conference when you make your reservation. The rates will be good for the nights of August 1 & August 2. We have also requested that each hotel give us as many handicapped accessible rooms as possible for the weekend. Those will be on a first come, first serve basis.

The cutoff dates for the reservations at the special rates listed above are as follows:

Doubletree – No cutoff date
Courtyard – July 14
Medical Center – No cutoff date

So make those reservations early!

Marinated Char Grilled Chicken Breast
Beef Lasagna
Mashed Potatoes
Broccoli Casserole
Tossed Salad
Assorted Rolls with butters
Peach & Apple Cobbler, Brownies and Lemon Squares
Sweet and UnSweet Iced Tea (lemons)

More information to come, be sure to check back often!