Southeastern Rett Syndrome Alliance

Every 5 hours a girl is born with Rett Syndrome, but most people have never heard of it. Have you?

Mark your Calendar!
Walk/Run for Rett May 1st, 2010
2010 Conference August 7th, 2010
Ride for Rett August 28th, 2010

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Notes of Interest

Links

Aurora Recording
Bart Stevens
Special Needs Planning

Our History and Mission
The Southeastern Rett Syndrome Alliance (SRSA) is a grassroots organization, established in January 2007, to provide a network of information and emotional support for families and caregivers of Rett Syndrome (RTT) children and adults; and to increase public awareness of Rett Syndrome.

The southeastern location of the organization inspired the lineage to RTT families residing in the states of Alabama, Arkansas, Florida, Georgia, Kentucky, Louisiana, Mississippi, North Carolina, South Carolina and Tennessee.

SRSA serves as an International Rett Syndrome Foundation regional representative, to provide direct support and advocacy at the local level.

SRSA’s purpose is to develop understanding and awareness of Rett Syndrome; to promote the general welfare of those with Rett Syndrome; to assist in indentifying persons with Rett Syndrome; to support families in coping with the disorder, and conduct activities aimed at prevention, treatment and eradication of Rett Syndrome.

SRSA Leadership:

Marilyn Archibald – Founder & President
marilyn@marchibald.com

René Davis – Vice-President/Secretary
rd0127@yahoo.com

Suzanne Oberholster – Treasurer
suzober@aol.com

If you are interested in helping with the 2010 conference in any way please email our SRSA Secretary

We really need volunteers for the Conference Committee!