Southeastern Rett Syndrome Alliance

The Southeastern Rett Syndrome Alliance (SRSA) is a grassroots organization, established in January 2007, to provide a network of information and emotional support for families and caregivers of Rett Syndrome (RTT) children and adults; and to increase public awareness of Rett Syndrome.

The southeastern location of the organization inspired the linage to RTT families residing in the states of Alabama, Arkansas, Florida, Georgia, Kentucky, Louisiana, Mississippi, North Carolina, South Carolina and Tennessee.

SRSA serves as a IRSF regional representative, to provide direct support and advocacy at the local level.

SRSA’s purpose is to develop understanding and awareness of Rett Syndrome; to promote the general welfare of those with Rett Syndrome; to assist in indentifying persons with Rett Syndrome; to support families in coping with the disorder, and conduct activities aimed at prevention, treatment and eradication of Rett Syndrome.

Date: Saturday, August 2, 2008
Location:
Bradley Lecture Center
Children’s Harbor Family Center at Children’s Hospital
1600 6th Avenue South 4th Floor
Birmingham, AL 35233 Phone: (205) 939-5999
Web Site: www.childrensharbor.com

More information to come, be sure to check back often!